Search results for rare genetic condition charities

The Sandcastle Trust

www.sandcastletrust.org

parent search

family member

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day trips

health search

diagnosed

health search

caring role

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day trip

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rare genetic condition

In their latest financial year, The Sandcastle Trust...

Raised: £64,392
Spent: £62,674

Figures are for financial year ending 2022-04-05.

Action for A-t

www.actionforAT.org

health search

cure

health search

genetic diseases

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ataxia telangiectasia

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antenatal screening

In their latest financial year, Action for A-t...

Raised: £593,451
Spent: £440,191
Charitable spending per pound spent: 81p
Highest salary: Between £60K and £70K

Figures are for financial year ending 2021-12-31.

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The Fragile X Society

www.fragilex.org.uk

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genetic condition

health search

fragile x syndrome

In their latest financial year, this charity...

Raised: £205,521
Spent: £127,654

Figures are for financial year ending 2022-02-28.

Wild Team Conservation

www.wildteam.org.uk

shield search

rare and endangered species

In their latest financial year, this charity...

Raised: £145,740
Spent: £151,337

Figures are for financial year ending 2021-12-31.

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International Gaucher Alliance

www.gaucheralliance.org

health search

patient

science search

scientific and medical

health search

disease and to disseminate

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latest developments

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genetically inherited

In their latest financial year, this charity...

Raised: £293,567
Spent: £267,491
Highest salary: Between £60K and £70K

Figures are for financial year ending 2021-12-31.

Medics 4 Rare Diseases

www.m4rd.org

health search

rare diseases

health search

rare diseases genetic and genomic medicine

In their latest financial year, this charity...

Raised: £101,327
Spent: £74,702

Figures are for financial year ending 2021-12-31.

Alpha-1 Uk Support Group

www.alpha1.org.uk

health search

treatments

health search

therapies

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working collaboratively

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genetic condition alpha antitrypsin deficiency

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genetic condition alpha

In their latest financial year, this charity...

Raised: £12,038
Spent: £4,700

Figures are for financial year ending 2022-03-31.

Cdkl5 Uk

www.curecdkl5.org

megaphone search

rett syndrome raising public awareness

health search

participation into clinical trials

health search

rett like disorders

In their latest financial year, Cdkl5 Uk...

Raised: £22,500
Spent: £17,350

Figures are for financial year ending 2022-04-01.

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Mind Body Eds

mindbodyeds.org.uk

professional search

medical profession

health search

suffering from ehlers danlos syndromes

health search

syndromes eds

In their latest financial year, Mind Body Eds...

Raised: £41,600
Spent: £18,954

Figures are for financial year ending 2021-12-31.

Harry's Fund

www.harrysfund.com

health search

genetic disorders

health search

du that syndrome

health search

rare genetic disorder

In their latest financial year, Harry's Fund...

Raised: £11,224
Spent: £13,229

Figures are for financial year ending 2022-05-30.

Manchester Teaching and Research for Rare Disease Group ( Mantrra)

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joint endeavours to diagnose

health search

cure congenital malformations and conditions with a genetic aetiology

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reports statements

health search

genomic medicine

In their latest financial year, this charity...

Raised: £3,550
Spent: £0

Figures are for financial year ending 2022-04-01.

The International Society for Gastrointestinal Hereditary Tumours

www.insight-group.org

health search

physicians

search

gastrointestinal

research search

early detection

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molecular

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molecular genetics

health search

clinical molecular

In their latest financial year, this charity...

Raised: £22,692
Spent: £10,799

Figures are for financial year ending 2019-08-31.

Arthur's Quest

www.arthursquest.org

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genetic

search

gene

search

variant

In their latest financial year, Arthur's Quest...

Raised: £2,556
Spent: £125

Figures are for financial year ending 2022-03-31.

The Ollie and Amelia Carroll Foundation

health search

disease rare

search

rare genetic

health search

neurological disease

health search

battens disease

health search

disease genetic

In their latest financial year, this charity...

Raised: £3,861
Spent: £0

Figures are for financial year ending 2022-04-05.

East and Central Africa Education Services

rwanda search

rwanda

burundi search

burundi

tanzania search

tanzania uganda

rwanda search

rwanda tanzania

africa search

central african countries

In their latest financial year, this charity...

Raised: £360
Spent: £140

Figures are for financial year ending 2022-03-31.

The Ciaran Buckley Trust

deaf search

deafness

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skin

health search

syndrome

health search

genetic disorder

search

condition genetic

blind search

syndrome blindness

In their latest financial year, this charity...

Raised: £387
Spent: £234

Figures are for financial year ending 2021-10-18.

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The Children's Rare Disorders Fund Ltd

health search

neurological disorders

health search

rare genetic disorders

Alternating Hemiplegia of Childhood Uk

ahcuk.org

professional search

medical profession

health search

therapists

health search

professionals medical

In their latest financial year, this charity...

Raised: £0
Spent: £0

Figures are for financial year ending 2022-04-05.

Alpha-1 Awareness (inactive)

parent search

close family

search

deficiency

search

genetic condition alpha antitrypsin deficiency

In their latest financial year, Alpha-1 Awareness...

Raised: £27,754
Spent: £24,219

Figures are for financial year ending 2020-03-31.

The Fragile X Society (inactive)

parent search

syndrome and their families

search

genetic condition

health search

fragile x syndrome

In their latest financial year, this charity...

Raised: £196,043
Spent: £200,396

Figures are for financial year ending 2009-02-28.

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